Saturday, June 2, 2018

Jedi pooped and we are heading to Seattle

Jedi is a wonder. He just had a blow out poop, for those of you that are not initiated in the ways of baby poops let me explain. This was a mild explosion, just too much runny poop to hold in his diaper. So it goes down his leg into his pants. Then when removing said articles poop proceeded onto the floor and a rug that we are going to be throwing out, before we leave for hospital. Jedi is now mature enough to inform us that he pooped. Now we change him standing and he patiently waited for us to take care of the situation. After his parents got him clean and in a new diaper he went on his way to play with his cars. Not accepting the plain matching pants his mother offered. Sometime later he went into his own close to pick out the brightest least matching pajama pants. That his father helped him put on without a second thought. I know this is more of a classic tale then something to wonder at. That is if the child in the tale was healthy. Jedi has survived through 13 months of leukemia, several rounds of chemo, and a non related Bonemarrow engraftment that failed. 

We have four days left to be ‘normal’. Living in a house, playing in the backyard, going to our local park, and heading to McDonald for happy meals. On the fifth day we will be heading into an early admit to Seattle Children’s for heavy chemo in hopes for a transplant. We don’t know how long we might be in Seattle. And we don’t know if Jedi will make it back home. We have a plan A, B, and C. Hoping we have a plan that will work in the end. 

I’m thankful for the brief time we have had at home. Savoring every moment we get with our happy Jedi.

1 comment:

Alex Echevarria said...

You're strength inspired me Jason. I read these updates and my heart breaks each time. I love you man, and I pray for you consistently.

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